Monday 29 June 2009

That's good soup.

It's a great pleasure to welcome the walk's latest sponsor: Natures Commune, a Midlands-based organic soup company.   The company embodies the perfect combination of great taste in food, concern for both the environment and local business, and a quirky sense of humour.  I'm working with them to see how they can best support us, but walkers could be in for some freshly-baked bread and cold soup while out on the trail!  I suspect we also might have a nice product basket available for Saturday night's raffle.

Please check back here regularly for updates.  In the meantime, please visit their website, become a fan on Facebook, and follow them on Twitter.

Saturday 20 June 2009

CHASE @ Christopher's Tour: Recap & Reflections

On Tuesday 9 June, I was privileged to tour CHASE at Christopher's, the hospice facility in Guildford, with Sian's sister Jade and other Help an Angel volunteers. CHASE closed the hospice for staff training and a few public tours, so we essentially had the entire place to ourselves. Viewing every major room in the facility was a great opportunity to see CHASE's impact on these families' lives. I've included a few links to photos on my personal flickr page. My batteries went flat during the tour, so I didn't get as many shots as I would have liked. I apologize in advance.

Community Manager Jackie Collins started us off in the Hobbies Room, a bright area allowing the kids to explore their creative side. Just outside in the hallway, we saw some of Sian's work and a great picture of the young lady.

We moved to the Family Accommodation area, where up to four families can stay while children are at the hospice being treated. To maximize outreach, CHASE limits any individual child's stay at Christopher's to 15 days a year. The family flats give the child's parents and siblings the chance to relax while still being close at hand.

As CHASE serves children up to nineteen years of age, they are very clear that teenagers are a different breed and have a unique set of needs. Christopher's accommodates for this through the Den, a home cinema junkie's heaven with a huge HD screen, surround sound, three Xbox 360s (!), and a set of CD mixing decks! I had always been boastful of my projector-based home theatre in Reading, but I think these teens have me beat.

Another favourite stop on the tour was the Multi-Sensory Room (MSR). This room is essentially based on the idea that any nervous system needs a balanced amount of stimuli in order to function properly, and the amount of sensory activities in the room (lights, waterbed, soft music, et al.) provide different ways to integrate sensory input.  As a highly sensitive person,  I was very drawn and could probably be very happy alternating between this room and the Den.

Of course, there is sensory play material along all the hallways to help younger children get a full experience, and the material also extends to the Sensory Courtyard. The courtyard is a central garden area with lots of aromatic plants, water fountains, ceramic and glass sculptures, wind chimes, and percussion instruments. It's a great place to sit and relax or have some serious fun!

We also saw a number of other rooms including the Garden Room, which serves as a quieter meeting place. Christopher's also offers complimentary therapies if families and staff are interested in reflexology, Indian Head Massage, and aromatherapy treatments. It also features a soft play (bounce) room and pool/jacuzzi.

What really impressed me about the entire tour was the emphasis on therapeutic benefit. Arts and crafts can help with mobility, sensory input, and emotional processing. The jacuzzi offers hydrotherapy. Play rooms offer a chance for challenge, stress release, or security depending on what's needed. While each room performs a different function, they each contribute to the goal of making a life-limited child's experience the fullest it can possibly be.

For me, the most powerful stop on the tour was the special bedroom suite known as MISTRAL. Losing children to illness is the reality of CHASE's work, and they have two special suites with temperature-controlled bedrooms where a child may rest for up to ten days after death. This space gives a family time to grieve while still feeling connected not only to the child but also the CHASE community. The suites have a reserved garden, offering a place of safety and privacy without risk of isolation. The garden features a beautiful water globe and a rill where families can lay a decorated pebble in their child's memory. Children's memories are also recorded in a memory book, often stored in the Sanctuary, the multi-faith room across the hall from MISTRAL. While nearly every child leaves CHASE, none of them are forgotten.

Though I didn't see Christopher's as it normally functions, my time there gave me much more clarity on not only what CHASE does but why I'm supporting them. I turned 34 this month, and most of the children at Christopher's don't make it halfway there. While many of my peers assure me that my life has been more interesting than theirs, I tend to see it has simply being blessed with a number of opportunities and choosing to take advantage of them. Most of said opportunities are ones the CHASE kids will never have, and realizing that puts my stressors in a completely different context.

This walk isn't about supporting a good cause. It's not about giving back to the community. It's not about feeling good that you've done something nice for somebody else. It's not about helping me, Jade, or the members of Clone. It's about making a difference in a child's life right now because in reality right now is the only time any of us really have. Payday is just around the corner, so donate online right now. If you live in the UK or have any UK contacts, re-read the How You Can Help right now and email me ways you're interested in helping whether it's walking, walker support, corporate sponsors, or event setup.  Expand the walk's online presence by joining the Facebook group or tweeting it.

Whatever you choose to do, I thank you deeply and sincerely... right now. “No act of kindness, no matter how small, is ever wasted.” - Aesop, courtesy of Philip Arnold

Wednesday 17 June 2009

Umm... Tweet?

So I just joined Twitter and am really enjoying it thus far.  Chances are you've heard about its impact on the Iran elections and subsequent protests, but if you haven't it's essentially a social networking site focused exclusively on quick, timely status updates.

I think this another great avenue for walk announcement and discussion.  If you want to catch the latest on it, just search on #surreyangelwalk.  If you have your own question or comment, just include #surreyangelwalk in your status.  It's that easy!  You're also welcome to follow me or walk sponsor Clone if you're so inclined.

I toured the CHASE hospice outside Guildford, and it was absolutely amazing.  More details will be in the next entry, which I hope to publish tomorrow.

Wednesday 3 June 2009

On Facebook? Add the justgiving app

I just received a tip from our donation page host, justgiving.com.  They have a Facebook application you can use to bring even more attention to the walk.  Just download the app here, and use the donation page address to get us even more sponsorship.  Thanks for your help!

Tuesday 2 June 2009

Hey, we're bloggin'!

Greetings all,

I've just set up the blog and Facebook group for anyone who wants to support the weekend, whether you're interested in walking, would like to donate money from across the ocean, or are up for drinks and great live music on the Saturday night. I'll be sure to keep event information updated without clogging your inbox and newsfeeds.

If you're interested in learning more about CHASE, there is a tour at Christopher's Hospice on Tuesday, 9 June. There's a Facebook event for it, so if you're interested please add yourself as an attendant as soon as possible.

The walk is shaping up nicely. Most of the route is charted, and I'm planning a few 13-to-15-mile Training Days later this summer to help finalise the course. You're welcome to join me whether you're interested in walking in August or just like staying fit.

If you don't fancy walking yourself, there are still many ways you can contribute during the weekend. Check the How You Can Help post for more details. For anyone looking to sponsor the walk financially, you can now donate online.

If you have any questions or would like to help, feel free to email me or, better yet, post a comment. Thanks for your support.

How You Can Help

Thanks for your interest in the walk. Hopefully, you'll find one of the following means of contribution will resonate with you.

Walkers: This would be the most obvious choice. If you're keen to walk either or both days, we ask that you solicit financial sponsors for CHASE / Help an Angel. You are welcome to use the main fundraising page or create one of your own. Barring a huge interest in walking, there will be no required level of sponsorship. That said, we suggest £200 as an individual fundraising target. We also encourage you to enroll a loved one on the support team (see below) to ensure any needs you have on the walk are met quickly and comfortably.

Support Team: Walking 28 miles over 2 days is no easy feat, and the support team helps walkers accomplish the task more easily and happily. By meeting the walkers at certain checkpoints, the team provides food, drink, clean clothes, first aid supplies, and, most importantly, moral support . Each waker will have a designated support team member, who will also serve as the walker's emergency contact throughout the event. Serving on the support team will require a car to ensure timely check point access along with an all-day commitment on either (or both) days. Support team members are welcome to support more than one walker, but we suggest you limit it to two or three.

Promotion: What's an event without a logo, proper website, flyers, and T-shirts? Pretty lame, that's what! Unfortunately, Colin has very little visual creative talent and needs all the help he can get in this area. We also need people to help produce and distribute flyers for the Saturday night gig. If you have a journalism background, you could write some great press releases for us. What else can we do to make this event look really, really cool?

Raffle / Silent Auction Prizes: - Can you get your hands on any really cool collectibles (autographed books/jerseys? limited edition publications?) Can you offer an service: be it in entertainment, grooming, or something that appeals to the masses? Could you get a free night's stay at a nice B&B or hotel? How about a meal for two at a good restaurant? Anything you can donate could be a great money-maker on Saturday night.

Solciting Sponsorship: Of course, you're welcome to donate money directly, and we are extremely grateful for your generosity. What about your employer? Do you have any contacts with beverage or sports nutrition companies who could donate water or energy bars/drinks for the walkers? What about sportsgear or shoe manufacturers/retailers? There are lots of ways that these companies could contribute, and it's a nice tax break and good publicity for them. I'm sure the walkers would be grateful to get a free rub-down from a local massage school. What can you get for us?

End-of-Day Event Assistance: While the walk is obviously the main event, we've got a great night planned on Saturday and are looking to have a nice closing ceremony on Sunday as well. We need people who can arrive at the walk endpoints early to cheer walkers as they arrive, set up tables for the auction, sell raffle tickets, and do the little things to help make the end-of-day events run smoothly.

This list is by no means all-inclusive. If there's another way you'd like to contribute, please email me or post your ideas in a comment. Let us know your interests. If you want to be involved, we will find a way!

Schedule of Events

Here's an rough itinerary of the weekend:

Saturday 22 August

  • 9am - Walk begins under Kingston Bridge, Kingston side
  • Walk follows Thames Down Link to Westhumble
  • 11:30 am - ETA @ Hogsmill Tavern, Worcester Park
  • 2pm - ETA @ Ashtead Park (north access, Epsom Downs Road)
  • 5pm - ETA @ the Lincoln Arms, Station Approach, Dorking
  • 8pm - Live music: Clone, a phenomenal rock covers band, at the Lincoln Arms

Sunday 23 August

  • 10am - Walk begins at Lincoln Arms
  • Walk connects with North Downs Way near Westhumble and heads west to Guildford
  • 1:30pm - ETA @ West Hanger Car Park, East Clandon
  • 3pm - ETA @ Newlands Corner, Guildford
  • 5pm - ETA @ Guildford Waterside Centre

Where the Money Goes

CHASE Hospice Care for Children
CHASE offers a diversity of needs based care and support for life-limited children and their families through its community care team and at the CHASE children's hospice - Christopher's - near Guildford. CHASE currently cares for 240 families throughout Surrey, SW London and Sussex.
Charity Registration No 1042495



Help An Angel Trust Fund
The Help An Angel Trust Fund was set up in 2005 to raise money for Sian Tolfree, a teenager currently supported by CHASE. The fund pays for vital equipment, enabling her to live an easier and fuller life. Sian is 14 years old and has a rare, incurable, congenital disease known as DiGeorge Syndrome. She has already undergone major heart and lung surgery multiple times and is dependant on a feeding tube and wheelchair.